The strategy session with doctors at the Huntsman
Cancer Institute took on another dimension when the diagnosis of having AL
amyloidosis came with another bit of news: a life expectancy.
My cancer specialist had very carefully taken me
through the strategy. We’ll attack the
AL amyloidosis implementing a weekly session of chemotherapy for a three-month
period, before we will see if my body is ready for stem cell transplants. I didn’t come into the process with a very
clear view of what that meant. Stem cell transplants usually come with a one
month stay in the hospital and come with a mortality rate of 10-15
percent. It is an option to highly
consider, he said.
A doctor has to be careful not to raise expectations
unnecessarily. Mine did the best he
could. He pointed out there are options,
but the reality is the life expectancy of the average AL amyloidosis patient is
18 months.
Seemed like little he said meant much after that.
My initial reaction was to remember my late friend,
Gordon Daley, who was given a one-year timeframe when he became a patient at
Huntsman, suffering the effects of Agent Orange. He lived for 10 years before his body simply
gave out.
The second is to realize what that general news really
means. It is an opportunity to seize the
day, to put higher value on each day and to get one’s life in order. I see it
as an opportunity to live, more than a preparation to die. I don’t want to be victimized by news, I want
to be liberated for however long the time left is.
From experience, I have seen the difference attitude
can make in the value of life and the process.
It brought to mind the dignity I thought my mother always lived with and
others I have greatly admired.
One of those people is the late LDS leader, Neal A.
Maxwell, who died of cancer urging us all the while to endure to the end well.
He put it this way: “At the center of our agency is our
freedom to form a healthy attitude towards whatever circumstance we are placed
in! Those, for instance, who stretch
themselves in service---though laced with limiting diseases---are often the
healthiest among us. The Spirit can
drive the flesh beyond where the body first agrees to go.” (Deposition, pp.
30-31.)
So I chose to seize the day, to seize the moment, to
see value in what lies ahead.
Given an eternal perspective, how we live matters a lot
more to God and others than how we die, or when we are called home.
This is beautiful. This is what we will pray for, for you and your family.
ReplyDeleteHang in there and you are in our prayers.
ReplyDeleteHave you heard of the book Being Mortal by Atul Gawande? Very interesting book and I highly recommend it. It discusses these very topics as people make decisions about how to spend their time when they feel like they have a timeline placed upon them.
http://www.amazon.com/Being-Mortal-Medicine-What-Matters/dp/0805095152
Seize the day!
Uncle Antone, you are so strong and have such a positive outlook on a situation that would crush many. Blessings to you - Tara
ReplyDelete